Cancer Support Community Valley/Ventura/Santa Barbara was honored with a check for $5500 by Impact Club Conejo Valley! We were represented by our participant, Silvana Zucca, who told her emotional journey of her son Madison and his battle with Hodgkin’s Lymphoma that began when he was just ten years old. Silvana credits CSC with giving her and her entire family the support they so desperately needed during Madison’s years of hospitalization and treatments. She is proud to say, Madison is cancer free and recently celebrated his 15th Birthday, and just received his drivers learning permit! Her younger son, Giovanni is 13 and still attends Kids Circle. Silvana said he wants to support other children who are going through what he experienced as a sibling watching an older brother go through treatment. Children develop tremendous compassion when they attend Kids Circle! Thank you so much to Impact Club Conejo Valley for helping us continue to provide all our programs for FREE, offering hope to people impacted by cancer.
Cancer Support Community VVSB and My Fairy Godfathers Team up to Provide Wigs for People Affected by Cancer
Diagnosed with stage three breast cancer two months ago, Karin Hochevar knows she’s going to lose her hair when she starts chemotherapy in a few weeks.
So when she heard about a wig giveaway at the Cancer Support Community in Thousand Oaks in which she could obtain beautiful blond locks that look similar to her own, she jumped at the chance.
“I’m very, very grateful because having cancer is very stressful. It’s a lot of bad news, bad news, bad news, and this is good news,” said Hochevar, a Newbury Park resident. “This is one of the hardest parts, losing my hair. It’s like, yuck, I don’t want to lose my hair.”
On April 5, Hochevar, 51, was among 20 people with cancer who received a free wig made with real hair. The value of the wig was $400.
The philanthropic effort was made possible by Steven Anderson and Andrew Ashton, the founders of My Fairy Godfathers, a nonprofit organization.
After being fitted for a wig on top of her real hair, Hochevar was so happy with the results she decided to wear the wig for the rest of the day.
“This is adorbs. Look at how cute this is, I just love it,” she said while inspecting her image in the mirror after the wig fitting. “I’m just shocked at how great this looks.”
Anderson and Ashton are business partners and owners of LaPosh Salon in Clearwater, Fla. For the past year, they have been giving away wigs to cancer patients throughout the United States.
“Andrew and I designed this collection of wigs for (model) Iman; that’s how we ended up with these,” Anderson said. “They’re handmade, and they take three days to make one wig. So you’ve got a nice quality hairpiece.”
Helping women who have lost their hair due to cancer has been very rewarding, Ashton said.
“We love it. We’re in the business of making people pretty and feel beautiful, so this is just a way we can do it,” Ashton said. “Most women that are going through this tend to not feel like they look good. That’s why we make them feel good.”
Such was the case for Andrea Caldwell, whose breast cancer has spread to her spine and liver. She arrived at the wig giveaway wearing a bandana to cover her hairless head.
“I’m on chemo right now, and I had my total hysterectomy about seven days ago,” said Caldwell, a 46-year-old Moorpark resident who heard about the wig giveaway from the American Cancer Society’s connection at St. John’s in Oxnard.
Caldwell was fitted by Anderson with a long blond wig with curls. After looking at herself in the mirror, she was stunned at how realistic the wig looked.
“You wouldn’t know it wasn’t my real hair,” Caldwell said. “I don’t like going out without hair. I had long hair so it’s disgusting for me not to have hair. I won’t have hair for another year and a half, so this is my only way to have it.”
A 50-year-old woman from Thousand Oaks received a short brown wig that she said looked very similar to her own hair before she lost it all to chemotherapy.
She asked to remain anonymous because “it happened too quickly, and I’m still dealing with the shock.”
She was diagnosed with cancer when she turned 50 and underwent a double mastectomy.
“Now I’m getting chemo. It’s very hard to just deal with the fact that it happened,” she said. “I know there are good parts because it was detected early, but I lost my hair after the first chemo right away.”
After being fitted for her wig by Ashton, she said, “I feel normal. Some people don’t care if they have hair or not; they’ll go out in public and they’re really brave, but that’s not me.”
The Fairy Godfathers connected with the Cancer Support Community through Harriet Wasserman of Tarzana, whose daughter had breast cancer and received support from CWC in Thousand Oaks. Wasserman now serves on the nonprofit’s board of directors.
“Our mission at the Cancer Support Community is to provide free cancer support . . . and it just made sense to partner with My Fairy Godfathers,” said Denise Coulter, program assistant at the Cancer Support Community in Westlake Village.
“My Fairy Godfathers empowers women by providing them a welcome boost of confidence,” she said.
This story was originally printed in the Acorn. You can find the original article here.
Guest Blogger: Steve Hentzen
My name is Steve Hentzen, and when I was 46-year-old, as a single father of my son Joel, who is 13, I tried to go to a Boy Scout camp that required a medical release form. But my doctor insisted on doing a physical before signing it. Because of this, a life-saving PSA test was given. A PSA of 19 led to a biopsy, which discovered a Gleason score of 9, and I had to tell my son that I had prostate cancer.
After surgery found clean margins, I felt I could embrace my second chance at life, but Joel struggled with not believing his dad was okay. It was a tough year, but we marched on.
One year later, prior to a routine screening, I met with a pastor who had been thinking of us and had an idea that my doctor could put on a staged doctor’s appointment for Joel to explain to him that his dad was fine, and they hoped this would help alleviate Joel’s anxiety and help him move on. But then, my doctor called to tell me that Joel’s worries were confirmed because my cancer was back.
I knew that we couldn’t go through this journey again alone and turned to Gilda’s Club Kansas City, where Joel ended up being one of the first kids they ever helped. During my daily radiation treatments for 8 weeks, Joel and I leaned on Gilda’s Club. Eventually, we got the news that the treatment was successful!
During my time at Gilda’s Club, I met other prostate cancer survivors which sparked the idea that we needed a place for others facing prostate cancer to meet, which Gilda’s Club provided. Thanks to the momentum of Prostate Cancer Awareness Day and meeting with fellow prostate cancer survivors, Caeser Blevins, Mike Mulcahy, and Sali Katz, we were able to start the Prostate Network. This is a survivor-led, volunteer-powered, not-for-profit, impassioned support group focused on helping men deal with issues related to prostate cancer.
In the fall of 2016, we discovered there was a complimentary organization, ZERO The End of Prostate Cancer, which champions strategic alliances with national and local organizations and politicians to protect critical government funds for prostate cancer research. Mulcahy, Blevins, and I participated in a run/walk to support ZERO in Kansas City, which led to our attendance at the 2017 ZERO Patient Summit. We hope to continue helping ZERO Cancer raise funds for research programs, and when I saw a sign for the Cancer Support Community at the summit, I recalled how my advocacy for prostate cancer started at Gilda’s Club Kansas City, an affiliate of the Cancer Support Community.
When you think about your family’s medical history, do you notice any patterns of cancer? Perhaps you’ve heard stories about a great-grandmother who passed away from breast cancer at only 35 years old. Or you recall hearing stories about your grandmother being diagnosed with ovarian cancer. You’re certain that both of your grandmother’s sisters died of ovarian cancer in their 70’s and that their brother, whom you’ve never met, battled stomach cancer. As you start to put these pieces together, you might wonder if this is a pattern that could one day impact your own health…
Signs of a hereditary breast-ovarian cancer syndrome in a family include, but are not limited to, any family member with:
- Ovarian cancer at any age
- Breast cancer at age 50 or younger
- Breast cancer in both breasts at any age
- Both breast and ovarian cancer
- Male breast cancer
- Ashkenazi Jewish heritage and breast cancer at any age
More than one relative on the same side of the family with any of these cancers:
- Breast cancer
- Ovarian cancer
- Prostate cancer
- Pancreatic cancer
When patients are concerned that they might be at high risk for hereditary breast -ovarian cancer syndrome, the best first step is to meet with a Genetic Counselor who can help determine the need for genetic testing.
Individuals who are faced with having a genetic mutation, might feel confused and overwhelmed as they work to process what this means. They may need education and support while trying to understand the range of options available. FORCE (Facing Our Risk of Cancer Empowered) is the only National Organization dedicated to improving the lives of those affected by Hereditary Breast and Ovarian Cancer. FORCE offers quarterly support meetings which provide an opportunity to meet others who know what you’re going through, to ask questions, learn or just listen in a safe and supportive environment.
Amy Yoffe, LCSW is a Peer Support Group Leader for the West Valley/Ventura Chapter of FORCE, and a BRCA1+ Previvor.
Next Upcoming Support Meeting: Sunday, May 7th from 10:30am-2:00pm.
The burgeoning intersection of health and technology holds tremendous promise. As experts in both fields are increasingly mindful of the other’s value, if not inevitability, we see exciting and meaningful examples of innovation in technology-enabled clinical care. Leveraging technology in the service of cancer patients and their families is not new to the Cancer Support Community (CSC). Our expansion into the tech space includes an array of digital tools to improve care for cancer patients and their providers, including Cancer Support Source, a comprehensive distress screening program for community oncology practices and patient advocacy groups; CancerEd, a series of eLearning courses for cancer patients, survivors, and caregivers; and the Cancer Experience Registry, a unique online community that allows people facing cancer to share their experiences, identify the issues that impact their lives, and learn from one another. (I strongly encourage our readers to explore these resources by clicking on the links provided.)
On trend with the proliferation of tech in health, this year’s South By Southwest Festival (SXSW), historically a convergence of the film and music industries, had a notable healthcare focus. From panels on patient-centric care and dynamic innovations in healthcare, to a novel three part series, Connect to End Cancer, health and tech experts from around the world came together to discuss their shared future. I was fortunate enough to attend this year’s SXSW and was struck by the thoughtfulness of many of the panelists I heard. From social determinants of health to unequal distribution of digital resources, I was relieved to see technologists acknowledge the critical importance of anchoring innovation to the lived experience of patients and clinicians. Conversely, healthcare providers – this nurse included – are increasingly supportive of using technology to improve health outcomes and reduce healthcare costs.
Former Vice President Joseph Biden brought the health-tech relationship to center stage, literally and figuratively, at this year’s SXSW. Addressing a packed and eager audience, Biden announced his plans for the Biden Cancer Initiative and called on all innovators and entrepreneurs to take on ending cancer as we know it, a continuing call to action from his leadership of the White House Cancer Moonshot.
Biden is right to identify the promise and unprecedented opportunity of addressing healthcare challenges through innovation, and CSC supports this trajectory in technology-enabled health services. We are also deeply committed to ensuring that all our efforts, from standard of care to pioneering, address the true needs of patients and families facing cancer because, as one SXSW panelist astutely noted, “If we forget about the human side of this, whether it’s the physician or the patient, we lose.”